There are currently no upcoming events planned, please check back later and see below for some of the activities PPV has held in the past
Notice of PPV Annual General Meeting 2022
We are pleased to confirm the 2022 Annual General Meeting (AGM) of Post Polio Victoria (PPV) will be held on Monday 5th December 2022. The meeting will commence at 11am (AEDT)
Register to attend the AGM – Bookings start Monday 21st Nov 2022 at 9am
Due to the impact of Covid-19 pandemic, the AGM will be conducted via Zoom (virtual room).
- Members who register to attend will receive a Zoom link via email following their registration.
- A link to a digital copy of the 2021/22 PPV Annual Report will be sent to all members a week before the AGM.
- If you do not receive either email, then please check your junk folder or contact us.
- Members must register to attend by Friday 2nd December at 6pm.
Following the formalities, we welcome questions from our members.
The PPV AGM is a special annual meeting to look over our achievements and elect a new committee for the coming year. Our annual report is also hot off the press in time for the meeting. There’s been plenty of discussions going on and exciting new projects to take us into 2023.
We look forward to seeing you there, and to another successful year for PPV!
REGISTER TODAY: Click below link to register for AGM
Shirley Glance OAM
Post Polio Victoria Inc.
T: 0431 702 137
Recognition at Last
Inclusive Communities and Services for
People Ageing with Post-Polio Syndrome
On 22nd November 2022, The Australian Association of Gerontology (AAG) partnered with Post Polio Victoria and Celebrate Ageing Ltd to facilitate a workshop on the experiences and needs of people ageing with
Post Polio Syndrome (PPS). The workshop at the AAG annual conference in Adelaide explored:
• The experiences of polio survivors
• The perspectives of researchers and clinicians
• The views of aged care service providers.
The workshop included a paper on the unique experiences and needs of people ageing with PPS and suggestions for inclusive services and communities. The development of the paper, which will be led by AAG, is expected to influence change – Recognition at Last.
The voices of people ageing with PPS have not been heard. Planning for communities and services has not taken the needs of people ageing with PPS into account. This is the first national workshop calling for that to change – and we would value your support.
Please find below our shared stories:
PPV President: Shirley Glance OAM
PPV Vice President: Peter Freckleton
PPV Secretary: Robyn Abrahams
The Hon Kim Beazley AC
For more information
• Shirley Glance OAM President Post Polio Victoria: 0411 660 860
• Dr Catherine Barrett, Director Celebrate Ageing Ltd: 0429 582 237
Workshop Link: Polio (aagconference.asn.au)
A big thank you to PDG Lion Pat Mills for attending the 2021 PPV AGM as our guest speaker.
Post AGM – A wonderful time was had continuing discussions around future partnerships and collaboration with Lions Australia.
We must work together to strive for change whilst serving our community.
PPV President Shirley Glance OAM
PPV Secretary Robyn Abrahams
PDG Lion Pat Mills
End of Year celebrations for the Post Polio Victoria Committee
A wonderful day was had by all.
We looking forward to an even better 2022.
In this webinar, discussing strategies for communicating, speaking up for yourself and being your own advocate. We will also look at communicating with your health professionals. Please click on the below link to book:
We will be looking at an overview of symptoms, self-management strategies, and relevant health professionals.
Please click on the below link to book:
Join our first ever Online Annual General Meeting.
Due to coronavirus restrictions, this event will be held on Zoom. While we miss meeting in person, we hope meeting online will enable more people with mobility issues and people from across the state to participate!
As well as report backs and electing a new committee, we’ll watch the premier of Darren Pereira’s presentation “Evolving orthotic management to allow the polio client to meet their mobility goals”
Global Citizen, RESULTS Australia, UNICEF Australia, Rotary and Polio Australia invite us join for a special virtual event to honour World Polio Day 2020! PPV’s Liz Telford will be speaking at the event alongside many people involved in the global polio eradication effort.
This annual event is usually held in Parliament House, Canberra, in an effort to ensure polio eradication remains front and centre of the agendas of key policy and decision makers. ?
But this year, its going virtual and throwing the doors open to global citizens, supporters, networks, individuals and organisations who are passionate about ensuring polio is the second ever disease eradicated from the world.
Dr Stephen de Graaff, a Rehabilitation Physican in Melbourne with extensive post-polio experience, will answer your questions and discuss post-polio issues. This session will held on Zoom. It will not be publicly recorded.
A member of the polio community with lived experience of using assistive technology, Peter Willcocks, and Occupational Therapist Dr Natasha Layton, take you on a virtual walk-through of home design and assistive technology products.
This webinar will be hosted on the Zoom platform, with details to be forwarded to participants closer to the date.
Come to our Annual General Meeting this year and meet other members of the Post Polio Victorian community.
Our Keynote speaker will be Professor Keith McVilly, the Foundation Professorial Fellow for Disability & Inclusion, in the School of Social & Political Sciences at the University of Melbourne. He will be asking – and perhaps answering the question – are people with disabilities included in today’s society?
Professor McVilly has been leading the project of archiving our late member Dr Margeret Cooper’s papers on the emergent disability rights movement in Australia.
The AGM is a great opportunity to get together with other members from around the state. Its also an important day to ensure the continued existence of our organisation and our work for the rights and inclusion of people with polio.
Light lunch provided.
RSVPs and apologies to firstname.lastname@example.org
On World Polio Day on Thursday, 24th October 2019, thousands of community groups around the world will hold events and fundraisers to recognize our progress in the global fight to end polio, and for those of us who’ve had polio ourselves, our stubborn determination to stay alive.
Wherever you are in the world find a World Polio Day event here
Polio Australia and the Bayside Polio Support Group, together with Carers Victoria, are conducting a free information session for people who have had polio and their family and carers. They are also extending the invitation to other people living with disability and their carers, as many people may have similar experiences. The session will include a question and answer session with a rehabilitation specialist doctor, strategies to manage fatigue, and a talk from Carers Victoria about resources and services available for carers, along with some strategies for self-care.
The session will be held at Hampton Community Centre (14 Willis St, Hampton) at 12.30 on the 4th of June, with lunch provided by a kind donation from the Bayside CWA. All are welcome to attend. Please contact Steph Cantrill for more details (0466 719 613 / email@example.com) or register directly at www.bit.ly/InfoSessionHampton.
Following the brief AGM formalities we’ll be having a focussed conversation with a young polio survivor who is taking the NDIS to VCAT, as well as a disability advocate about the importance, benefits and challenges of “speaking up for ourselves”.
We hope you can join the conversation and attend our AGM.
Polio Network Victoria invites you to join them in Hawthorn for Polio Day 2018.
Polio Day 2018 will celebrate the theme “We’re Still Here” and provide information to assist with navigating Post-Polio, and the My Aged Care system.
Join us to listen to informative speakers, meet new friends and catch up with local Polio networks.
Polio survivors, family, carers and health professionals are all welcome.
Expression of Interest Only
Polio Australia will once again be facilitating its 4 day / 3 night Polio Health and
Wellness Retreat for polio survivors and their partners/family members from
The Stamford Grand has 9 wheelchair accessible rooms available.
The holistic ‘Body / Mind / Spirit’ theme will continue and include ssessions such as:
- Interactive group sessions and one-to-one consultation opportunities with a variety of allied health professionals
- Hydrotherapy and exercise options
- Latest orthotics, aids and equipment displays
- Chair Dancing
- Meditation Sessions
- Activities To Keep The Mind
- Active Creative Workshops
There are an estimated 400,000 polio survivors in Australia. Many are now experiencing the Late Effects of Polio (LEoP) and struggling to access appropriate health care and support. Polio Australia’s “Walk With Me” event aims to raise awareness about the LEoP and fundraising efforts will allow us to continue to support polio survivors and provide education to health professionals.
Our committee member Jill Pickering will be joining the walk as a representative of Post Polio Victoria
Come to our AGM to help plan for 2018!
The venue provides plenty of disabled parking spots and is a short walk from the Moreland Metro Station.
Light refreshments are provided, with time to discuss together the issues facing us individually and as a group.
RSVP to PPV Secretary Ron Exiner
0417 392 078
Master of Clinical Psychology student Kristine Koh and supervisor Dr Toby Newton-John are from the University of Technology Sydney. They are conducting a research project and would like to invite people with Post-Polio Syndrome (PPS) who are experiencing chronic pain to take part. They are hoping to recruit between 100 and 200 participants.
Continue reading Chronic Pain and Post Polio Syndrome Research Project
The formal Annual General Meeting will be followed by a presentation and review of the 2016 Australasian Pacific Post Polio Conference: Life Stage Matters.
RSVP by Friday 14th November
PPV Secretary Ron Exiner…………….. or firstname.lastname@example.org
If you will need carer assistance on the day and/or would like PPV to provide some financial support (50%) for the taxi or public transport cost, please let us know.
You are invited by Post Polio Australia to attend the first ever Australasia-Pacific Post-Polio Conference, “Polio: Life Stage Matters”, to be held in Sydney on 20 to 22 September 2016.
For more information please visit Post Polio Australia website
The formal Annual General Meeting will be followed by time to consider PPV’s work over the year and discuss priorities for 2016.
We would like you to be part of this conversation. Mary-ann Liethoff will update us on Polio Australia’s latest activities and lunch will follow at 12 noon.
RSVP by Friday 13th November
Liz Telford 0417 006 455 or email@example.com
If you will need carer assistance on the day and/or would like PPV to provide some financial support for the taxi or public transport cost, please let us know.
PPV is supporting Polio Australia in a fundraising campaign.
Funds raised by PPV will be shared between PPV and Polio Australia.
Guest Speaker: Dr Kevin Doughty
Morning tea included)
Free to consumers
Polio Australia is, once again, asking for polio “heroes” to join them at Parliament House, Canberra on Wednesday 26th June 2013, in the lead up to September’s federal election.
We encourage as many polio survivors and their supporters as possible to join the federal election “We’re Still Here!” Campaign. There has never been a better time to make our voices heard, especially as most polio survivors will not derive any benefit from the National Disability Insurance Scheme (now Disability Care Australia) due to the 65 age limit by the 2018 roll out.
Weird and Wonderful is a feature length documentary that tells the story of the rise and fight of the disability rights movement from the late 1960′s until today. Why did people with disabilities rise up and start complaining about their lot. Who were the leaders of this rights movement and how did they get this message out? Disability rights is possibly the last minority revolt following on from the women’s movement, the civil rights movement in the US, the indigenous rights movements in countries like Australia and the gay right movement. Unlike other rights movements it’s one that any of us can join at any time by virtue of accident or illness, and yet so far this story has barely be seen as worthy of attention… certainly never in Australia.
Filmmaker Sarah Barton has been working on this documentary for more than 4 years and is now in the editing phase. She and her team are currently seeking Crowdfunding through Pozible and invite you to pledge a donation between now and March 15th 2013.
Our Strategic Planning meeting was held on Monday 22 August at Northcote Town Hall. To our delight, about 70 people attended. Some were already Polio Support Group members, others had attended Polio Days but many had not been previously to any polio related meetings. There were also representatives from Independence Australia, Polio Services Victoria, Rotary and the Council of Self Help Groups.
The meeting was expertly facilitated by our consultant, Cheryl Sullivan, but the real stars were the participants. We had three hours of participation, engagement, ideas, questions and lunch. People shared their views with the facilitator and with each other and the feedback straight after the meeting was how useful and satisfying participants had found the day.
Many ideas were raised at the meeting. Amongst these were the need for better awareness of how to access information on Post Polio, advocacy for aids and other community assistance to help people be as independent as possible, the need to collaborate with other services and group here and interstate, and the need for better education of service providers, particularly GPs and paramedics.
The other important issue that was discussed was the need for people to get involved with PPV in order to do the things we identify as important. A number of people have offered to be involved in working groups on such issues as research, advocacy and communication. We have had offers assist in other ways as well. We also need people to nominate for the Committee at our forthcoming AGM (Saturday November 26).
The next step is that Cheryl Sullivan will present a revised draft Strategic Plan to the Interim Committee meeting in late September. The Plan will then be put to our AGM for adoption.
Thanks to the committee, the wonderful helpers, The City of Darebin and the Disability Advocacy Resource Unit who provided funding, the participants and to Cheryl for contributing to a successful day.