About Us

Post Polio Victoria Inc. was established in 2011 after a large gathering of people with polio in Melbourne, Victoria. It was clear to us all that we need to advocate for the services we need and to ensure that both we and the health professionals have the necessary information to ensure the best possible care.

Post Polio Victoria (Inc) is run by a volunteer management committee consisting largely of people who have had polio.

PPV has no on going funding and its work is reliant on donations and one-off grants.

Committee of Management

The present committee was elected at the last Annual General Meeting held in November 2019.

Shirley Glance OAM

Shirley is the current President of PPV. She is also active in the community as a member of the National Council of Jewish Women, and as a community advocate for Breast Screening Victoria.

Read Shirley's full bio
Nimo Hersi

Our Secretary Nimo Hersi was three years old when she caught polio in Mogadishu, the largest city of Somalia. She now works in the community sector and is developing resources to help people parenting with polio.

Read Nimo's full bio
Nanette Morel

Nanette, AKA Ms Chocolate Frog, is a retired child-psychologist, and active community member.

Read Nanette's full bio
Robyn Abrahams

Robyn is a Registered critical-care nurse, and midwife, and worked as a management consultant.

Read Robyn's full bio
Susan Shaab

Susan is PPV’s Vice President, editor in chief, and passionate advocate for public housing and social justice.

Read Susan's full bio
Peter Freckleton

Peter is a barrister and expert in legal translation

Read Peter's full bio
Ron Bell

Ron is our former president. His story was published in the book ‘The Calliper Kids’ on page 130

Read Ron's full bio
Judith Bell

Judith Bell is a long standing committee member of PPV

Lan Huynh, Treasurer

Lan is our Treasurer, when she’s not busy being a dentist and accounting student!

Contact the Committee

Achievements

  • Providing information on polio research, aids and equipment for health professionals and people with polio through our website and newsletters
  • Raising awareness amongst health providers and governments about the health and support needs of people with polio
  • Advocating to State and Federal governments to ensure that the rights and entitlements of people with polio are protected with the introduction of the NDIS
  • Polio Alert adopted by St Vincents Hospital to alert Health Professionals on the special requirements for people with polio undergoing surgery.
  • Requesting that the Australian and New Zealand College of Anaethetists (ANZCA) alert their members on the special anaesthetic requirements of people with polio, resulting in an article in their journal and guidelines that patients can give to their anaesthetists.
  • Writing submissions to the government on the Assistive Technologies discussion paper.
  • Advocating against changes to the Mobility allowance and Multi-purpose taxi programs.
  • Consumer meetings with Polio Services Victoria, State and Federal MPs

Mission Statement

  • Post Polio Victoria (PPV) aims to assist people with polio to stay connected to their community.
  • PPV will advocate for post-polio needs to health professionals, services and government authorities.
  • PPV’s goal is to provide information, advice and raise awareness of issues that surround polio to the broader community.

The Objectives of PPV are to:

  • Focus on strategic issues that are beyond the scope of individual members and Polio Support Groups to undertake alone, or that are of significant interest and benefit to the membership as a whole.
  • Advocate on issues related to Post-Polio to health professionals, services and government authorities.
  • Raise awareness and educate people on issues that surround polio to the broader community.
  • Build positive relationships with the Victorian Polio Support groups and other relevant Victorian community groups.
  • Foster relationships with Polio Australia, Polio Services Victoria, Polio Network Victoria (Independence Australia), and other relevant services and community groups.
  • Provide information and advice on Post-Polio and its late effects, to people who have had polio, and who may now be experiencing, or starting to experience, the complications associated with this condition.
  • Assist people who have had polio, along with their families, carers and networks to support each other and stay connected to their community.
  • Be aware of and support current appropriate research into the effects of poliomyelitis.
  • Raise funds to support the stated objectives of PPV.
  • Promote the eradication of poliomyelitis.

Previous committee members

Barbary Clarke

Barbary is a member of PPV’s Policy Working Group, is also part of the Long Breast Press lesbian feminist authors collective.

Read Barbary's full bio
Liz Telford OAM

Liz is our founding president, and was recognised with an order of Australia Medal for her service as a psychologist as well as member of the polio community

Read Liz's full bio
Margaret Cooper OAM

Margaret Cooper OAM was a long standing PPV committee memeber and one of the great pioneers of disability rights. She worked tirelessly for access and inclusion. Margaret was an inspiration to PPV and to many others and she is be greatly missed.

Read Margaret's full bio